The past few days we have not had much communication about our status because things have changed in very significant ways. Krista's levels of pain became excruciating to the point that she felt like it was torture. The pneumonia diagnosis was that it was neither bacterial nor fungal, most likely a virus which is very difficult to treat, especially with the unfunctional immune system left by the ever increasing leukemia. After reviewing her options, Krista made the decision that she wanted to go home under hospice care to enjoy her remaining days in the company of her family, kept comfortable under the extensive pain control they are allowed to do that hospitals aren't. She is extremely happy about this whole thing, because the other alternatives were going to be awful for her.
Hospice care means that she is no longer being treated for her ailments, but they are helping her through the symptoms, especially the pain. They have been very effective, so she is currently comfortable, though very weak and frail. Since she is not getting treatments (including blood transfusions), we can make some rough guesses as to how long she has left with us, and it doesn't seem to be very long. She is loosing red blood and platelets at a steady rate, so at this point we may have only days to a week left. She was quite pale and not breathing regularly last night, so I was not going to be surprised if we lost her overnight. Fortunately, this was not the case but she has the sense that it's not too far.
She has been reading a book by Randy Alcorn called
Heaven, since she wants to know as much as she can about where she's going. It's a very good perspective completely taken from the pages of the Bible rather than people's experiences, mythologies, or other less reputable sources. God is the real expert on the subject, so I trust His revelation of what it's like more than any other source. If you have any questions about heaven, I highly recommend that resource.
I mentioned that book because there was a funny incident that happened last night that expresses so much of Krista's heart. I had purchased the audiobook version of it because her reading ability is fading, but there's been so much going on that she hasn't had time to listen to it. I played it for her last night while she slept without her knowing. There was a startling noise in the middle of the night that woke her, though she was still in a partial dream state. She heard the descriptions of some of the areas of heaven and, feeling disoriented, she said, "Where am I? Is this heaven? It seems like an airplane terminal. This is boring!" She was so disappointed that she wasn't already in heaven! Needless to say, that is not what heaven is like (and wasn't a judgement on the quality of the audiobook either). We are glad to have some more time with here here.
This is a very difficult time between Krista's weakness, making sure that the kids are prepared, and making arrangements for when she passes. Because of all this, we are going to need to back off direct communications with people and have a dear friend of our's, Catherine Grant, make limited private arrangements on our behalf. You can email her at jandcgrant@aol.com if you have any questions. Our family intensely appreciates the outpouring of love we have received from family and friends, but this is a very private time for our family. Please do not be offended that we are not generally accepting visitors at this time. There will be a wonderful memorial service that Krista is helping to plan to remember good times and celebrate life that we will invite everyone to participate in when the time comes. You may contact Catherine if you would like to help out with that service. We love you all!