It's hard to believe, but Krista's last IVIG dose was today. That schedule has been going for so long, it feels strangely open. We are only going to UCLA every other week, now, and on the off weeks we're going to need to go to get labwork done at the local lab.
It's not that there's no more home health right now, though. Krista is still getting IV antibiotics twice a day, morning and evening, until at least Monday evening. The antibiotic dose is very high, and it is regularly causing Krista to develop nausea around 4 pm. I called UCLA about this, and they said that it is a side-effect of the antibiotic. She needs to start taking an anti-nausea regularly instead of as its needed. It's very important to keep fluids down, and have small meals regularly, so she doesn't end up in the ER again.
The Jesusita fire is going crazy. It was 84 degrees just before 9 pm, winds blowing strong, constantly changing direction. From the main street near our house I could clearly see the enormous flames shooting up the mountainside (in full daylight even), and the smoke is incredibly thick. We are not in a danger area, but many people including two in my group at work are in the mandatory evacuation zone. May God have mercy on those who are affected by this terror.
Therefore let everyone who is godly pray to you
while you may be found;
surely when the mighty waters rise,
they will not reach him.
You are my hiding place;
you will protect me from trouble
and surround me with songs of deliverance.
(Psalm 32:6-7)
Hope Notes from Krista and Mike is a journal of encouragement as this Christian mom, and supportive husband and caregiver, face the ups and downs of a stem cell transplant after recurring leukemia. Start at the beginning by clicking September 2008 in the archives and reading forward. It's not always pretty, but it's real. We pray you will be blessed by these passages in some way.
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