Thursday, May 21, 2009


It's been a rough day for Krista today. She's been dealing with the usual symptoms: nausea, weakness, etc. The past few days, she's been like this -- especially in the morning -- and then in the evening, she usually feels a little better. Today she followed the same pattern, but the whole day was taken down a notch. The bad part seemed a little worse and the good part seemed a little worse. It was a bactrim day, so that may have something to do with the quality of the day. The nausea made keeping pills down really difficult, but at least they've stayed down.

We are going down to UCLA tomorrow for a follow-up appointment from last week's saline flush. On Monday, her creatinine level was down to 1.4 which is lower than Friday's 1.8. (1.4 is the top of the normal range for creatinine.) It's possible, though unlikely, that the level's gone back up again and is making her feel bad and nauseous. We'll find out tomorrow.

Another thing we need to have checked is a strange shaking that she has been having. Shaking is a normal side-effect of the cyclosporine that she takes to prevent Graft-Versus-Host Disease -- but it is normally a sign of having a bit too much of it. The weird thing is that the dose was reduced last week down to a pretty low level. I can't imagine that she's on the high side in her blood stream. Again, we should find out tomorrow.

Adam started taking antibiotics for his ear infection last night, and he seemed to be doing better today. But when he went to bed tonight, he said that his ear was hurting like it did yesterday. Poor guy.

Jenny Sutton brought us a mexican casserole yesterday, and Shay Seaman brought us a poppy-seed chicken dinner. Thanks for helping us out... it's been one of those weeks!

Do you not know?
Have you not heard?
The LORD is the everlasting God,
the Creator of the ends of the earth.
He will not grow tired or weary,
and his understanding no one can fathom.
He gives strength to the weary
and increases the power of the weak.
Even youths grow tired and weary,
and young men stumble and fall;
but those who hope in the LORD
will renew their strength.
They will soar on wings like eagles;
they will run and not grow weary,
they will walk and not be faint.
(Isaiah 40:28-31)

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